Adjusting...to the New Normal

Well, Jordan has had her feeding tube in for over a week and I have been feeding her through it for one week now. I am fairly comfortable with what I am doing, although she makes it difficult by pulling it our or kicking the tube full of Pediasure. I am amazed at how quickly she is healing! She still has the steri-strips over her stitches and the stoma (site where the tube is placed) is healing nicely. She is getting just over 25 oz per day over 6 feedings. I have been able to work her out of the overnight feedings - she does get one feeding while sleeping - usually 10 or 11 pm. I am getting more sleep which makes it much easier for me to function day to day.

Jordan is back to herself, crawling around and getting into everything. She especially loves to follow Conner as he runs around the house. She is pulling herself up onto her knees and I'm sure will soon pull up to standing. I am still amazed at how far she has come over the past 6 months!!

We found out yesterday that the stomach acid can bleach her clothing! She was in the exersaucer while we ate dinner. After we were done, Derrick picked her up to feed her and her shirt was wet. It looked kinda funny and I looked closer and realized that the once cute blue tank top with butterflies on it, had a big bleached spot on the front. I guess we will keep her in ugly white onesies at home and only dress her when we are going out of the house. It kinda stinks because she has sooooo many cute clothes but I don't want them to get ruined!

Thank you to everyone for your prayers and support. We are amazed at how caring and generous our friends are. We have seen God working through this situation and in Jordan. Please continue to pray for her continued growth and development. We are so excited at the things she is doing, but we know that there's lots more things that she will accomplish!! She continues to blossom more and more every day.

Another thing is that I will be having surgery on my wrist on Thursday, Sept. 4th. I have DeQuervain's Tenosynovitis - it's a form of tendonitis with the 2 tendons that connect my thumb to my arm. It starting causing some discomfort several months ago and escalated to severe pain at times. After trying Naproxin and icing it, seeing a hand specialist and having a shot of cortisone and wearing a splint for the past 6 weeks, they are going to go in and fix it. I should be unable to do much for several days following the surgery and will be restricted for about a month. Please pray that the procedure goes smoothly and the recovery is quick and I am able to care for my family and kids.