Yesterday brought both frustrations and celebrations. To start the day, Jordan's therapist came over for her home call. After having requested that next year Jordan have home calls by a speech pathologist, she informed me that the school had read her evaluation and had decided that she would continue to be her service provider because she was cross-trained in that area. I really feel it is important for Jordan's speech to be the focus of these visits because she will be starting physical therapy at Spectrum Health in a few weeks and that will not be as important for her through Early On. The Dr.'s and therapists at the HDVCH Gerber Center all made that recommendation for her so I am extremely frustrated that I am now going to have to pursue this further so Jordan can receive the treatment she should. I spoke with the speech path at the HDVCH GC and she recommended I contact the principal and push for Jordan to have a speech path/therapist come to our home.
Later in the afternoon, we had some wonderful news. I had a second phone interview for her to receive Social Security Disability Income and found out that we qualified and have been approved!!! I will be receiving a packet of information soon and need to gather all of the documentation they require for proof of income and assets and I have an official in person interview on Monday to finalize the payment amount. This is HUGE for us because we have been struggling financially and there is no opportunity for me to return to work due to the amount of therapy she will begin receiving once we start physical therapy and oral therapy in the next few weeks as well as the cost of childcare for a special needs child.
It's amazing how this journey brings such highs and lows! I am absolutely amazed at how much work it takes to be her advocate in so many ways!!! Today I want to just sit back and enjoy my kids, but there are so many more phone calls to be made and things to get done to ensure that she receives the BEST care available.
