Today's MFB Therapy

At today’s MFB therapy, Ellen and Jane were both encouraged since Jordan took 24 ½ oz of Pediasure yesterday. We began feeding her by spoon and she did well taking a few spoons of Pediasure and then a spoon of apple juice. After about 1-oz pediasure, she seemed to tire of spoon-feeding and she started sucking on her fingers and didn’t have any more interest in the food. We brought out her bottle and she drank about 2 oz from it before she got tired and didn’t want any more. More than anything we discovered that Jordan knows when she is hungry but may not be able to determine when she is full. She tires of eating before she is full and therefore may not understand a "full" feeling. Ellen encouraged me to be careful not to go over 5-6 oz total per meal with her for now until she is regularly eating that much.

Ellen also worked with her on some tongue therapy – during her spoon-feeding she noticed that Jordan’s tongue was very active on the left side of her mouth but she never used it on the right side. Ellen used her finger to try to encourage her to move her tongue to the right side. Jordan thought that it was fun to play with Ellen like that and eventually she did move her tongue to the right side a couple of times. Ellen said that right now we need to focus more on nutrition and we can do therapy only when she’s getting her nutrition.

As far as the MRI tomorrow, Jane said that if I wake Jordan up once the night before for a feeding and once the night after for a feeding, that should replace 2 of the 3 feedings she will miss and she should be okay. She also said that if on Friday, I have some concerns of dehydration, or she doesn’t start eating her normal quantity, I may want to call my pediatrician and they may have me go into the hospital to have an IV of fluids. They said that the radiologist is required to report on the MRI within 24 hours and that even if the report is not given to Dr. Burdo-Hartman before Jordan’s appt next week, she should be able to bring it up on their computer system and read it.